Good Morning Everyone,
My BF had Nodular Sclerosis Lymphoma 13 years ago. It has recently come back (well, they think it’s the same kind, but not 100% sure). Anyhow, he’s started treatement this past Tuesday (1/26). First treatement was Bendamustine. Then he went back on Wednesday (1/27) for a combination of Brentuximab Vedotin & Bendamustine. He felt “OK” after the Tuesday treatment… and then he felt “OK” (just tired after the Wednesday treatment…until… UNTIL about 24 hours after treatment. Around 3:30pm Thursday he showered, but seems right after that shower he started getting sick… and sick, and more sick. Which is about 24 hours after his 2nd treatement.
Anyone out there taking the Bendamustine and Brentuximab treatments? If so, can you let me know how it is going for you? I’m told that the treatments he’s on are ‘predicable’… meaning… once you go thru one Tues/Wed treatement… youll know what the next treatment is going to be like… so, next time, we will know that around 24 hours after his treatment he’s going to be sicker than a dog.
I read some posts where people are going to work, living their daily lives, doing the same things, but maybe just a little ‘less’ of them… well, my BF is down and out. He’s not moved other than to go to the bathroom. He’s very sick. He says he has ringing in the ears, heaviness in his limbs, he says it feels like his body is ‘buzzing’. He is having a hard time keeping any food down… he’s thrown up bile-- nasty green bile… I’m trying to force him to drink water, but… he’s afraid to drink water. He also said he has a headache.
The doctor has him on two different anti-nausea meds… one to take, and the other one to take IF the first one doesn’t work… and then he’s on the meds to keep him from getting shingles… Anyone have horrible side effects from the anti-nausea meds and/or the anti-shingles meds?
it’s hard to tell what is making himt he sickest… and now he’s afraid to take the anti-nausea meds.
I have never had the chicken pox… should I go get a chicken pox vaccine?
I’m sorry there are so many questions in this post… I just don’t know if the amount of ‘sick’ he’s experiencing is normal. I was told these two chemo’s were tolerable… and you could still do things… but… from what I’ve seen that’s not the case.