I am 25 and my mum is 57, a very fit and healthy lady with no other health issues.
My mum was diagnosed with Large Diffuse B cell non hodgkins lymphoma last summer (a major shock as she had no symptoms - she went to the doctors after banging her stomach to which her belly button swelled - this is when they found a lump…) she had the RCHOP treatment and then radiotherapy, which all ended January this year, since then she had undergone multiple pet scans due to reports having certain wordings and phrasing we were concerned about. Her results were on Monday.
They told us that from the last pet scan, where a few small area where active, this has shown to have grown on her most recent scan, meaning RCHOP wasn’t fully successful is killing the tumour completely. It is now growing, there now needs more treatment.
We had a meeting at Christie’s in Manchester yesterday with Dr Gibb and Prof Radford, where they explained her options. The next step is she will be having 2 cycles of the DHAP treatment and then another pet scan. (during this time they will check her organs to ensure they are healthy enough and harvest stem cells). If the results of the pet scan come back negative (meaning the tumour is still there but has shrunk so no longer positive) then she will continue on to have the high dose chemo along with the stem cell transplant, where she will be hospitalised for approx. 4 weeks.
My question is to anyone/everyone, does anyone know what happens if the pet scan comes back as positive? I am ssumming this means the DHAP hasn’t worked, so they will possibly try another chemo? (and not do the high dose and stem call?)
Another question is, has anyone had the stem cell transplant and it be successful in curing this horrible disease?
I am just looking for a bit of clarity and would like to find someone in the same situation?
In speaking to the consultants last night, they sounded very concerned and mentioned that the statistics are not particularly great for this scenario. But I want to be positive and hear from people who have had success from this?