How long from finishing maintainance to relapse

Dear All,

I hope this is the right place to post…

I was diagnised with bulky follicular lymphoma in 2015 which also cost me one kidney. I was 44 at the time. I immediately went through 6 cycles of R-Bendamustine and achieved full remission. Then I started 2 years Rituximab maintainance. I just finished maintainace and feel nervous about what happens now and how long remission will last without maintainance support.

I was therefore wondering how long people remained in remission after finishing their maintainance treatment before relapse? I couldn’t find any studies that showed this and thought this info might be on interest to others too.

Would be grateful to hear from you…

hi best to post in the low grade NHL section as thats where most fnhl people post, from what I have read, some go years and some don’t, its the million dollar question

John