Firstly, wishing everyone on here much love and strength. I am my mum’s carer and she has n-h lymphoma DLBCL. I was recently told that her lymphoma has transformed to high grade and I had a telephone consultation with the consultant to discuss this. I asked the consultant about time lines / aggressiveness of the lymphoma and was told that it could be 2-3 months. I interpreted this to mean that this was how quickly the lymphoma could spread/ worsen. I didn’t tell my mum because I didn’t want to worry her and for her to just focus on that.
A letter was then sent to my mum in which the consultant has written that her prognosis is a life expectancy of 3 months.
I was appalled that something like this is put in writing. Has anyone else had this and if so, have you spoken to the consultant about it/ what was their response. I am due to speak to him on Thursday. Unfortunately, I also have a nurse who is unhelpful and tries to refer me to palliative care for everything and just wants to avoid trying to deal with my queries!
Thanks very much.